(Had some issues, had to repost) Since I got a positive result on the new Lyme culture test that came out recently, I thought I'd share as much information as I can on getting it for others. Again, this test is supposed to be a 100% conclusive test (it is a direct test) since they try to actually GROW the bacteria versus looking for indirect markers like with Western Blots or ELISA.
- The lab that does this test is Advanced Laboratory Services. The basic version of the test is $600 and at the time is most likely not covered by insurance. (I got the basic version)
- Their number is (855) 238-4949. I would recommend calling because of course they'll provide the best answers :)
- I got the test done through my doctor's office (a clinic that specializes in CFS, Fibromyalgia, and a few other things called Holtorf Medical Group). They have a contract with the lab that does this culture test so it was very easy since I was able to get my blood drawn there.
- Most doctors and other blood draw labs (like Quest Diagnostics) don't have a contract with the lab (I assume). As I understand it, a contract means they can draw the blood for you and are legally responsible for sending it off to Advanced Labs to run the test.
- From their FAQ page:
Who may order this test?
- Also from their FAQ page:
What are the guidelines for blood collection to ensure the highest culture yield?
- Once you have the kit, you will need to find someone who is willing to do the blood draw for you.
I also just bought a book on Amazon called Healing Lyme: Natural Healing And Prevention of Lyme Borreliosis And Its Coinfections. It only costs ~$14, has 59 reviews and 4.5 stars! I browsed the reviews and what I loved about it is that 1) it's written for physicians, and 2) it's supposed to have references to actual research literature, 2) it references both alternative and traditional therapies/medicines which in my opinion is the optimum for wellness. Not for everybody probably, but I always ask my doc a million questions and want to know everything he knows. And I enjoy knowing the sources that information is coming from. There are so many websites online with information on Lyme, but do not cite any sources. I'm always left wondering if they just made this up on the spot or have any actual literature to back up their (sometimes very wild) claims. I will update with tidbits I find interesting!