Friday, March 30, 2012

Possible positive Lyme culture test results

So my doc had me to the new Advanced Lab Services Lyme culture test (see this post). He said I wasn't getting better fast enough on his treatment for CFS and wanted to get me checked out to make sure I didn't have something else as well.  I've been having a hell of a time getting the results. The front office staff apparently hasn't been well educated on the procedures for this test, I keep getting the run around and then the lab didn't send the tests in time for my doctor's appointment (which was supposed to be today) so I had to reschedule after making a bunch of phone calls. Such unnecessary stress! Pretty sure I'm not the one who's supposed to be calling back and forth between the lab and the doctor's office trying to coordinate getting lab results sent! Anyway, they're sending the results on Monday, which will include pretty pictures of the actual bacteria they cultured and "other relevant information".

Anyway, front desk lady said I came up positive on the test. POSITIVE for Lyme! I am not going to get too worked up over it since she sounded a bit confused on the facts, and could have misunderstood the lab tech she ended up talking to because I kept getting different stories from everyone. Plus I don't have any idea how I could have gotten it, makes absolutely no sense. But, if that's true...this may change things. I told my brother about it and he said "we should celebrate". But heck no, no celebrations until I actually start to feel better! I will not have false hope!

My appointment has been rescheduled for next Wednesday and I might go crazy until then sitting on this information. Hopefully the lab will actually send the report on Monday and I won't have to keep rescheduling! I'll update when I find out more.

Wednesday, March 21, 2012

Swimming in the stream

And trying to just let things float on by and not snag, but it's not working at the moment. I've managed to get my life to a (self-deluding) point where it felt like things were under my control. Work has been not as exhausting because I've had a very understanding/compassionate boss for a year, I've been doing restorative yoga twice a week (when I haven't been bogged down with peripheral illnesses) lately, going grocery shopping for myself recently, things in the relationship are good, I've stopped pushing myself to do things I shouldn't for the most part, etc etc. Things order (at least as much as they could be). But, this just serves to show one should never get to comfortable and think things are ever in control because they are not. Nothing toooo serious has happened, I'm just starting to freak out/stress out about things changing and I feel like a victim of life because things are happening that I have no control over and can't even respond to properly to better my situation because there is no "better" outcome.

First off, my car hydroplaned on Saturday (spun more than 360 degrees on the freeway and hit the center divide). Fortunately, I got off easy with (all things considered) minimal damage to my car and a mild concussion + whiplash. But it has been such a stressful week because of that so I'm already off-kilter because of that. I've had a dull headache since and my neck/upper back hurt. Now I find out that my boss is leaving us, which leaves a vacuum and no one to buffer all the requests for physically demanding tasks that I just can't do. Top it off, it seems like my coworker, who has taken up most of the physical tasks, is also stressed out and might be leaving. This is right when things are ramping up at work. I've been stressed out beyond belief about this future prospect (which, I realize I really need to stop and just see how things unfold) because the idea of feeling extra sick all the time again is just frightening.  I've finally felt some modicum of control (hah!) over my life, and now it's terrifying me that I'll lose it.

I also stupidly decided to start looking for a job just in case things fall apart at work, but any job I find would require working full-time to get benefits, and I don't know if it's worse to stay at my job part-time and kill myself physically, or work full-time at a less physically demanding job when I can't even work full-time now. But when it comes down to it, there are very few jobs where you can just sit all day, and as I'm coming to learn, I am completely unskilled. Working in a research lab has not given me any skills, and considering I got this stupid condition a year out of college I have no "career path" to speak of. I'm feeling pretty useless right now.

Anyway....I'm just all emotionally wonky. Aside from the car accident and my boss leaving, nothing too bad has happened, so I'm mostly all sorts of stressed out. I know I need to pull it together because stress makes me feel so much worse. Sigh.