60-70% of the patients that come to him with CFS and Fibromyalgia turn out to have Lyme disease.
Quite a shocker, let me tell you.
Which leads me to...saw this article about how Advanced Laboratory Services are starting a research trial to create a faster, cheaper Lyme culture (faster than the $600 test that takes up to 3 months that they currently have). They run your sample through both the full, well-established test, and through the new methods as part of the research study free-of-charge. Someone else posted on the forum where I saw the article that only certain states qualify (i.e. your doctor has to be registered in that state) for the research trials:
CA, CT, FL, IA, MD, MA, MN, NH, NJ, OR, PA, UT, VA, VT and W
and they're still in the process of sorting everything out, the testing hasn't begun yet.
The first step seems to be to have your doctor fill out a form and contact Advances Lab Services. From the article:
Advanced Labs will only talk to doctor's offices, so it won't do any good to talk to them directly unfortunately. I hope this is somewhat helpful to people! If you need a doc to write you a test (they're in California, but you can reside anywhere to see one of their doctors--they do Skype/phone appointments and such-- my CFS doc's clinic can provide a doctor. However, they're out of network and might not necessarily be covered. but one appointment is probably cheaper than the original cost itself test itself, if you can get it free.