Friday, June 28, 2013

Vendor website for arts/crafts by the chronically ill?

So, to start, an update I guess. Feeling pretty down lately, my stupid jaw is not getting much better (can't open much to eat or talk) and my legs still hurt. Can't do much of anything and it's been putting me in total panic mode! I can't be on antibiotics indefinitely and I'm missing primo opportunity to make myself better. Sigh. I spend my days heating my jaw and don't know what else to do with myself. Hopefully things right themselves soon!

Anyway, I just found a pretty nifty site that (partnered with National Geographic) sells art, furniture, jewelry, etc by individuals from poorer communities all over the world (Mexico, Ghana, India, etc). It's philanthropic in overtones since you're supporting these people's livelihoods. I don't know how much they take off the top, but it's still a cool idea (and plus I love international wares!). In case anyone's curious, it's www.novica.com.

But looking at it gave me an idea. I know some people who are ill have taken up arts and crafts as a way to spend time and, well, help feel fulfilled in some way. What if there was a website for those that are ill to tell their story and sell their craft to support themselves somewhat? They could keep the money or donate it to a charity, their choosing. Does anyone know if something like this exists? And if not, anyone have any thoughts on whether this is viable? I've also been considering a career change to something web-based (design and web programming) that I can do from home, and this would be a great project to work on if there's merit to it.

If anyone would be kind enough to share their thoughts, I'd much appreciate it!

Thursday, June 6, 2013

Breaking down....and building back up?

Ugh, I am SO incredibly frustrated right now! I feel like my body is falling apart. My back is not better from the whiplash; I can't sit up from laying down without pulling it, can't lift things, can't do anything repetitive or weight bearing with my arms/back essentially. I've been trying to eat more fruits, veggies, and nuts and in the process strained my jaw from chewing too many hard things. So now I officially have a temporomandibular joint (TMJ) disorder and can't open my mouth very much, can't eat much, and can't talk for more than a minute without reaggravating it and lots of pain. My digestive system is apparently on the fritz since blood tests are indicating I'm not absorbing my vitamins and minerals properly (malabsorption?). And because of that I'm low on essential nutrients for proper function of well, everything. But currently it's manifesting as lots of tendon pain in my legs that won't go away! Oh, yeah, and then there's my interstitial cystitis which leads to my painful bladder. All of that on top of the usual fatigue and muscle pain. Joy.

The thing is, I can deal with it. I've dealt with it all in stride and everyone with CFS and Lyme and whatever has about a billion things wrong with them. The really frustrating part is that it's preventing me from doing what has been helping me inch towards feeling better these last 3 months. I've FINALLY found a path for myself that I can see potentially leading to full recovery (more on that later) and my body is just failing me and not allowing me to go down that path because I have to rest and fix all these injuries before I proceed. I'm just about ready to rip my hair out! I guess things just can't be that simple.

So, I have to take a deep breathe. Be OK with taking it easy in the moment. A few+ months off won't make a big difference in the big picture, right? Especially relative to the 5 years that's already passed. Sigh. Sometimes I like to think of it as my body having to break all the old dysfunctional parts down to build up the new and better. Too bad that's not what's actually happening, but it makes me feel better :) At least I'll have energy/time to be on the computer now and take online classes...and can re-aggravate my carpal tunnel while I'm at it ;)

Hope everyone's doing well out there in blog land!